Question

advice please

Answer 1

What advice do you need?

Answer 2

Yes? :)

Answer 3

advice given if on what is given

Answer 4

um i just need help
i know this isnt the right subject but @mathmale and i where chatting and i asked if this subject is good but anyway Sent on: https://www.speakpipe.com/voice-recorder

Answer 5

um it should send you to my recording does it?

Answer 6

this is it my bad

Answer 7

@Astrophysics @awesomeboy3 @Awolflover1 @DanJS @Empty @Hayhayz @inkyvoyd @jabez177 @mathmale @mathstudent55 @Photon336 @rvc @zakiullah



sorry for the static

Answer 8

@Serenity74

Answer 9

@pooja195

Answer 10

Aw ali sweety please don't hurt yourself. Pleas sweety, whether you go to hell or heaven isn't the issue here. Just don't hurt yourself sweety. Self harming isn't good for yourself, don't go into depression that will make you stress out more and will make your health worse. Think about the positives for now okay? I WILL do my research on this particular cancer and will try my best to help you sweety, for now just think about the best moments that have happened in your life, don't think about death, spend more time with your loved ones and try to be happy, I will try my best to help you sweetheart, it's okay to be scared but it's not okay to self harm yourself honey.

Answer 11

Can you pls tell me what the doctor has tested you with like any kinds of medications? Any treatments you have been placed on? Anything abnormal happening since your visit from the hospital?

Answer 12

omg you and @Hayhayz just made me cry happy tears knowing someone understands me
it's called neurofibroma and thankyou @Serenity74 and @Hayhayz you made me feel a bit better

Answer 13

What stage are you in? First stage? Second stage? Third stage?

Answer 14

I'm going to be honest with you. At one point in my life I self-harmed as well. It's not worth it. Instead think about the future, your life! :) That's all I am going to say.

Answer 15

im in type 1 @Serenity74
@pooja195 i dont have a very long life

Answer 16

Make the best out of it. I am sure you can talk to your doctor it's only stage one.

Answer 17

Ali, I may not be going through cancer but IK how it feels to be lonely and feel like harming myself and depression. I want to try my best to help you and you are too young through go through this. Nobody should deal with cancer it's not fair. Frick I hate cancer. Dang it. Anyways, sweety can you please give me details on what kinds of medications you are talking? What treatments your doctor is giving you? Which stage you are in? I will let you know if I have anymore questions. Just don't think abut death okay sweety? Just don't think about it whatsoever. I will be here even if nobody is behind you okay? Just please don't think about harming ourself cause I don't want you to go into depresssion cause that will affect your body even more.

Answer 18

it's called neurofibroma @Serenity74 and im in stage 1

Answer 19

I got all of that sweetheart. I am asking you about your medications honey.

Answer 20

um... what do you need to know like can i get examples

Answer 21

I want to see how effective they are and see if I can see for better effective medications. I may be a teenager who is still in highschool but my dream is either become a cardiologist or onocologist to decrease the death rates at least in my country and then globally. I know doctors and my parents will help me (I will ask them about the medications) for sure. Sorry for questioning you too much honey.

Answer 22

Are you on any kind of medication?
Are you going through chemo therapy already?
Are you on any kind of treatment? Other treatments than chemo therapy? Radiotherapy? Surgery? Anything like that???

Answer 23

Stage one is the earliest stage of cancer and Thank God you found out so early.

Answer 24

it's okay im i get a lot of headaches um i take a hole bunch of medacin um called B2, serrapeptase, i have to go to the doctor evey week so they can check if my body functions properly surgery every year um i have a lot more meds but too much too name i have too take nassiea pills

Answer 25

Oh jesus sweety, sometimes i feel like these doctors just don't know what they are doing. Are those the medications use the most?
Also, another advice would try to look up more information about your "disease" and hunt for different treatmeants don't loose hope even if a website says something heart wrenching have hope okay? Just promise me you will have some hope honey.

Answer 26

i have 1% of hope left and yes they are used the most

Answer 27

Where did they find the turmors? Are they cancerous once for sure?

Answer 28

Ask your doctor if Stereotatic Radiosuergery will benefit you in anyway. THIS IS AN IMPORTANT QUESTION TO ASK. OKay?

Answer 29

i have 1 tumor in my head that blocks the water fluids from draining and one behind my eye and they said of how big it is it's not remove able and okay i will ask him

Answer 30

Alibaby, so is it okay if my mom prays for you?

Answer 31

yes it is

Answer 32

Can you give me your moms number, she will call your mom and talk it over

Answer 33

um i have to asl her if it's okay

Answer 34

okay ask her, tell her there is this Canadian pastor woman

Answer 35

Ali do you know what type of Neurofibromatosis it is? Cause there are three types but Type 1 for sure isn't it.

Answer 36

wait no it's type 2

Answer 37

and okay danica518

Answer 38

Okay Type 2. Okay Stage 1 but Type 2 okay.

Answer 39

okay i will ask my mom if your mom says its okay, im pretty sure my mom will do it

Answer 40

yes @Serenity74 oh um @danica518 my mom is sleeping ill have to ask her tm if that's okay

Answer 41

just leave me a msg, leave it on the user @dan815

Answer 42

okay i will

Answer 43

okay, have a good night ali!

Answer 44

Dont be scared, everything is going to work out!!

Answer 45

Ask your doctor if there is any way of you gain more merlin back onto your chromosome 22, not sure if that's possible but asking won't hurt.

Answer 46

okay i will im writing every thing down

Answer 47

okay finish

Answer 48

wait i am looking at different things right now. I am trying my best to help you.

Answer 49

thankyou https://www.youtube.com/watch?v=PXBKaOkmQhw i was listening to this it mad me cry

Answer 50

man you are making me cry sweety.

Answer 51

im sorry i didnt mean too

Answer 52

no it's just cancer is such an emotional topic for me, i have heard so many dreadfu things, ironically I want to become a Cancer doctor. Wait, I found more.

Answer 53

Ask about Auditory brainstream implants as well

Answer 54

ok

Answer 55

Ask if that will help you in any way.

Answer 56

okay i will is there anything eles

Answer 57

Still looking.

Answer 58

ok

Answer 59

Also, do me a favor, when you go for your next visit please let me know what the doctor said to those questions I asked you and also, ask him which chromosome it is affecting. I feel like it's affecting chromosome 22 but maybe another one as well? Like 17 to 22? Idk just ask him if he knows which ones it's affected.

Answer 60

what if you arent active?

Answer 61

Active as in? Physcially active? Or Biologically chromose-iclly active?

Answer 62

im not really able to be active i lose breath after 1 min of walking and it cause me to be at risk of diabetes :/ everything is wrong with me

Answer 63

Hmmmm less work should give you less issues sooo try to sit down on something that moves for you instead of you moving around.

Answer 64

Hmmm maybe a wheelchair? Cause you can sit down and not walk and it won't lead to diabetes as well?

Answer 65

no not really cause if i sit for to long i get headaches and throw up and my tumac starts hurting

Answer 66

Sweety messge me more tomorrow? I have to sleep it's almost 2 am here and I have to wake up tomorrow around 5 am or so for this science thingy. I will message you more about this if I find something new on this.

Answer 67

thankyou very much

Answer 68

Hmmm.....sit for 15 to 20 minutes and then stand up for a while and then sit back down?

Answer 69

btw this is one doctor name dc hertzler joe DiMaggio

Answer 70

I will google about him tomorrow as soon as I wake up and will give you updates. Could you pm me his name so I won't forget? Thank you sweety. Pls keep smiling.

Answer 71

@Mehek14 HELP NEEDED HERE AS SOON AS U SEE THIS.

Answer 72

@zepdrix

Answer 73

I am sorry I couldn't help honey. But pls let me know how your visit went okay? Thank you. G'Night.

Answer 74

gn and thakyou too

Answer 75

um the 2secound link @Mehek14

Answer 76

@hartnn

Answer 77

hey @dan815 and @Serenity74

Answer 78

Hi, how are you doing today

Answer 79

okay ig my mom got a call from my doc and said it got worse :(

Answer 80

okay, have you talked with your mom about the call yet

Answer 81

just believe me!! all this stuff will go with prayer! everything is possible with God

Answer 82

But you guys should talk to my mom first, she has experience with cancer and tumor stuff

Answer 83

Did u ask the doctor though?

Answer 84

Like about your treatment options? Like about the sterotatic radiation? Cause that can shrink the size of the tumor and you can keep decreasing it.

Answer 85

@dan815 I agree God is great but you have to also see the scientific side as well. If she doesn't get any treatment then that's not good, there has to be a way for this issue.

Answer 86

@Serenity74 Sadly there is not much we can do.

Answer 87

I think it's up to her parents and family and doctor.

Answer 88

IK but loosing hope is never the answer. Asking for optional treatments is never wrong. Whether he life expetancy is low or not it's better than dying at such a young age. I wouldn't mind dying today (well not today but you know) and I have seen things already and experienced important things already SHE HASN'T. Other treatments OUT there might help her get better and at least let her live till the age of 21 ATLEAST. SHE WILL GO TO FREAKING COLLEGE.

Answer 89

Ali sweety can we start talking about this on pm?

Answer 90

ok im sorry i had to shower i wasnt able to ask him @Serenity74 okay do i message @dan815 too?

Answer 91

yeah just let me know when you talk to your mom about the phone call, i think its a lot better to let out parents talk

Answer 92

our*

Answer 93

It's your wish sweety. Danyyboi is a pretty chill guy and is smarter than me so he will be pretty helpful too.

Answer 94

thankyou